I am compelled to sue the hospital system. I want to make a difference. I want to make a change in the way that children are treated there. I do not think that anyone will listen to a "bereaved" angry mother. They will only listen if they take you seriously. They will only take you seriously if you sue them. This is just my thoughts I wanted to get out, because I am having a hard time with the vision of this happening to another family and child.
The medical director at shift change one day toward the end of Penn's stay at Methodist told the physician she was taking over for, in front of us, "that was our problem, we dried him out too much." I couldn't believe she would say that in our presence, but she truly believed we were stupid "internet" parents, and believed me to be nothing more than a "stay-at-home mom". When you make reference to "overdrying" a child who has now been found to have clots everywhere, the comment is seriously bordering on admitting that you and your staff have caused the clots almost knowingly. It's insane...actually it is maddening, and I think that I am having a difficult time because I know that there is so much to attribute to their negligence that the fact that we let this slide makes me fearful that it will continue to happen to other innocent babies.
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I have good friends who lost a full-term healthy baby boy to group B strep just hours after he was born. They didn't listen to his mother who asked why he was ashen. They didn't listen to his father, an EMT who demanded a lifeflight to the children's hospital (4 hours by car, 45 min. by air) and they denied everything even after his father unsuccessfuly tried reviving him in an ambulance that finally came to transfer him to the NICU. It was too late.
They did win a suit against the hospital AND a separate suit against the attending physician. I can put you in touch with them if you're interested. You can reach me at deanleah at comcast dot net
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